Personal Stories:

Comments and suggestions from a GBM survivor:

 

"I had one open brain surgery in 2011 after diagnosis. In 2018 late November I had a recurrence, and then to combat that I had targeted radio-surgery, one blast which was the same as having six weeks of targeted radiation therapy. Since then my tumor has been stable. I am under the care of Dr Timothy Cloughesy head of neurology UCLA. The radio-surgery from UCLA has been performed on patients outside the USA, who have traveled to UCLA. This is very cutting edge technology not available in certain countries. I was the 3rd person to have this technology performed on me, so far so good. My tumor is still stable since the radio surgery. My recommendation  would be to contact UCLA and speak with them, especially Dr Timothy Cloughesy. He has been rated in the top three super doctors in the entire United States. 

 

Plus, their research team is phenomenal cutting edge. They are also working with patients regarding the GBM vaccination protocol. 

 

tcloughesy@mednet.ucla.edu

 

This is what I did to keep my tumor in check between 2011 - 2022.

 

My protocol:

 

I am posting this because this is what I did to combat my glioblastoma. Everybody is different and remember to be in tune with your body so you do not push yourself over the edge which is very easy to do with GBM. Well this is what I did and hopefully there'll be something in this that will help you out.

 

CURE GBM BRAIN CANCER 

 

What I did and still do to combat my #GLIOBLASTOMA IV. 

 

Ten years in and still being extremely vigilant. 

DO NOT EVER LET YOUR GUARD DOWN WHEN IT COMES TO GLIOBLASTOMA #BRAINCANCER .

 

THIS IS MY ROUTINE TO COMBAT GLIOBLASTOMA BRAIN CANCER. 

 

1. BRAIN SURGERY - removal of brain tumor 

 

2. #TEMOZOLOMIDE: - 2 years on chemotherapy 

 

TEMODAR®(temozolomide) Capsules.and targeted radiation therapy(six weeks) combined.

 

3. After targeted radiation and chemotherapy start drinking 3 liters a day of 9.4 pH water, take specific vitamins( DO NOT TAKE VITAMINS, ANTIOXIDANTS OR DRINK 9.4 PH WATER WHILE ON CHEMOTHERAPY AND TARGETED RADIATION THERAPY),  

 

ORGANIC diet and no stress. Creating no stress in your life is probably the hardest thing you will have to do to survive GLIOBLASTOMA BRAIN CANCER.

 

4. Listen, watch and read #COMEDY. 

 

5. 1:1 or 5:1 THC/CBD OIL HIGH IN #CANNABINOIDS every night right before you go to sleep.

 

Cannabinoids are a group of terpenophenolic compounds found in Cannabis species (e.g., Cannabis sativa L.). This summary will review the role of Cannabis and the cannabinoids in the treatment of people with cancer and disease-related or treatment-related side effects.

 

ReferencesAdams IB, Martin BR: Cannabis: pharmacology and toxicology in animals and humans. Addiction 91 (11): 1585-614, 1996. [PUBMED Abstract]Doblin RE, Kleiman MA: Marijuana as antiemetic medicine: a survey of oncologists’ experiences and attitudes. J Clin Oncol 9 (7): 1314-9, 1991. [PUBMED Abstract]

 

6. EXERCISE even if it is a short hike, FORCE YOURSELF if you want to survive. Take Yoga if you can. 

 

7. NEVER GIVE UP NEVER SURRENDER TO GLIOBLASTOMA BRAIN CANCER NO MATTER WHAT YOU WILL GO THROUGH. 

 

8. STAY POSITIVE, NO MATTER WHAT. 

 

You want to have the gift of life so push the thought of defeat permanently aside.

 

9. When you get depressed find a way without medication to get back in control. 

 

10. Did I say NEVER SURRENDER ALREADY. It’s worth saying again. You’re worth it. 

 

11. If you find yourself falling from survival, don’t be ashamed to seek help from a therapist, so call your neuro-oncologist or general practitioner for a referral. 

 

12. Stop consuming all sugar,  processed and unprocessed. If you are going to eat food and drinks with sugar, make the food items are as low as possible in sugar content. Eat organic food, NO GMO'S.and cut down on salt intake.

 

13. #Steroids  -  starting with #Decadron right after brain surgery,  after two years on chemo and when I stopped chemo I  replaced Decadron with 15 mg of #Prednisone. Everyone has their own pace to wean off of steroids. I have personally come down to 4 mg a day. This level is good for me however everyone is different.

 

Steroids are used to keep swelling down in the brain.

 

14.  Keep calm and stay as stress-free as possible when battling GBM. Remember it's your brain negative energy creates negative outcome. Stay as positive as possible even if the world around you seems to be off keel. Enjoy the day. Have an amazing day. Positivity heals.

 

By the way, since I wrote the aforementioned, I've had a recurrence- November 2018, since then I've had radio-surgery and I just finished my year of chemo(2019).

 

LIFE IS WORTH THE FIGHT. No one told you it was going to be easy and none of us are getting out of this alive, life. Keep sunshine in your heart for what time the gift of life gives you. LOVE."

 

For more information please contact Ellie Marks at cabaintumor@gmail.com

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Story #2

 

Andy Solomon bravely fought for his life for five years after his diagnosis of a Glioblastoma Multiforme
stage IV brain cancer in November 2007. His journey began with a CT scan ordered by our family
practitioner after experiencing a number of alarming symptoms, within an hour of the scan our doctor
called and told him to get to the ER immediately, and so our journey began. He was transported by
ambulance from the hospital in Fresno to UCSF that night. After a week in the hospital and a decrease
of the swelling on the brain it was safe to operate and remove the large lemon size tumor from his left
occipital lobe. Radiation and chemotherapy ensued and eventually a second craniotomy, all while the
doctors at UCSF offered countless clinical trial studies in which Andy was eager to volunteer, in hopes it
would help others.


Our hearts were broken on December 12th , 2012, when lost someone truly special to a terrible disease
and one we felt could have been avoided, had we known the risk of using a cell phone.